The Cystic Fibrosis Foundation: New Opportunities, New Questions For Nonprofits - The Diane Rehm Show: "The Cystic Fibrosis Foundation raises about $130 million a year in its ongoing effort to help people who suffer with the deadly disease, but that amount seems small change in comparison with the $3.3 billion it just received related to an investment it made years ago in small drug development company. For a health-related nonprofit, $3.3 billion is a jaw dropping amount. It gives the foundation the means to explore all kinds of new ways to help patients and to look for a cure, but the projected per patient cost of this drug, $373,000 per year, raises concerns. Please join us to discuss new questions about venture philanthropy."
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Showing posts with label NpPhilanthropicInvestment. Show all posts
Showing posts with label NpPhilanthropicInvestment. Show all posts
Thursday, November 20, 2014
Deal by Cystic Fibrosis Foundation Raises Cash and Some Concern - NYTimes.com
Deal by Cystic Fibrosis Foundation Raises Cash and Some Concern - NYTimes.com: "Proponents say it speeds drug development while also providing potential monetary rewards that can pay for even more research.
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But there is some concern that a profit motive could divert the organizations from their primary mission — helping patients — and create a conflict of interest. For instance, the price of the main drug developed through Cystic Fibrosis Foundation’s investment is $300,000 a year."
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Continue reading the main story
But there is some concern that a profit motive could divert the organizations from their primary mission — helping patients — and create a conflict of interest. For instance, the price of the main drug developed through Cystic Fibrosis Foundation’s investment is $300,000 a year."
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